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SMS Foundation UK

Supporting SMS families for a positive future

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We are a small charity that supports families living with Smith-Magenis syndrome (SMS)

Never feel isolated or alone. Call our helpline and leave a message: 0300 101 0034 (we aim to respond to messages within 48 hours).

Newly Diagnosed?

Hideg Szel Fuj Edesanyam May 2026

"Hideg szél fúj, édesanyám," he whispered to the empty air, the lyrics of the old song his mother used to hum catching in his throat.

As the sky turned a bruised purple, István finally reached the gate. The garden was overgrown, but the sunflowers, now dry and bowed, still stood like tired sentinels. He pushed open the creaking door. The house was cold, but on the table sat a single, dried sprig of rosemary—a traditional symbol of remembrance. Hideg szel fuj edesanyam

The wind didn’t just blow across the Great Hungarian Plain; it sighed. It carried the scent of dry earth and the distant, metallic tang of the coming winter. For István, standing on the edge of the village, that wind felt like a physical weight against his chest. "Hideg szél fúj, édesanyám," he whispered to the

Ten years had passed since he left the thatched-roof cottage. He had chased the lights of Budapest, then Vienna, seeking a life that didn’t involve calloused hands and the constant prayer for rain. But every autumn, when the first frost turned the grass to silver, he heard her voice in the gusts. He pushed open the creaking door

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Never feel isolated or alone. Call our helpline: 0300 101 0034

Please note: This is an answer phone service that will alert us as soon as a message is left. A member of the team will call you back as soon as possible – we aim to respond to messages within 48 hours.

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Connect with SMS families in your region and be the first to receive updates on any social meetings, conferences, and fundraising events going on!

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Registered UK Charity (CIO) 1186647

Scottish Charity (SCIO) SC050921

Registered with the Fundraising Regulator
Hideg szel fuj edesanyam

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